Purple and Black
Taking Independent and Unofficial Back

Been a rough couple of weeks...

benni

Well-Known Member
A few of you follow me on FB, so you know what has been going on. Others, maybe not so much. My nephew was found June 26th, unconscious and barely breathing. He has been ICU since that time, on a vent, dialysis, feeding tube. The doctors have diagnosed him with anoxic brain damage and have told my sister there is no medical recovery for this. I've found out since that time that it was due to an accidental pain pill overdose. His girlfriend said he took, what he thought, were loose Tylenol pills that were in the glove box of her car for a headache. They were actually codeine. She said that they had "messed with him" and that he still had a headache and took more on top of it, not realizing how many he had already taken. They've taken him off the vent as of yesterday, and his eyes are open, but he's focusing on nothing. My sister said that the doctors have told her there is no brain function at all.

She called me last week to talk and informed me that one of our cousins sons was found around the same time as my nephew, in the same condition (barely breathing and unconscious) but they had found him in time and he's already home. And then told me another cousin had died last Sunday, his funeral was Friday. I stayed with this cousin, my aunt, and uncle, for a while after my mom had died when I was little, so always felt close to this part of my family.

My sister is really struggling dealing with the situation with Timmy. She had lost her 6 yo grandson in November, when he drowned. That's only been 7 months ago, and now she is dealing with a new kind of grief on top of it. The doctors have told Leslie that if Timmy were their son, they would let him go, because he won't come back from this. When my sister had called, she made sure I had a chance to talk with Timmy (my Timmony Cricket), tell him I love him, and say good bye. She is ready to let him go, but his father isn't able to. His father was the one that was with their grandson when he drowned, so he has blamed himself, and I think if he agrees to turn off all life support, he'll blame himself for this too. So their goal right now is to get Timmy to a health condition in which he can be moved to a long term care facility for a couple of months, to give him every opportunity to regain some function, but that if he doesn't regain any functioning, they'll decide at that time what further steps to take or not take.

I've been waiting, ever since June 26th, for my sister to call me and tell me that Timmy has died, waiting to make that drive to Missouri for a funeral that I hope never has to come. It's been a rough time for my sister especially, and I'm being supportive for her, being here for her, listening when she needs to talk, and praying for a miracle, but have been grieving as well.

Add work to this and increased job responsibilities and stress on top of that ... I'll get through it. I always do. But right now is rough.
 
A few of you follow me on FB, so you know what has been going on. Others, maybe not so much. My nephew was found June 26th, unconscious and barely breathing. He has been ICU since that time, on a vent, dialysis, feeding tube. The doctors have diagnosed him with anoxic brain damage and have told my sister there is no medical recovery for this. I've found out since that time that it was due to an accidental pain pill overdose. His girlfriend said he took, what he thought, were loose Tylenol pills that were in the glove box of her car for a headache. They were actually codeine. She said that they had "messed with him" and that he still had a headache and took more on top of it, not realizing how many he had already taken. They've taken him off the vent as of yesterday, and his eyes are open, but he's focusing on nothing. My sister said that the doctors have told her there is no brain function at all.

She called me last week to talk and informed me that one of our cousins sons was found around the same time as my nephew, in the same condition (barely breathing and unconscious) but they had found him in time and he's already home. And then told me another cousin had died last Sunday, his funeral was Friday. I stayed with this cousin, my aunt, and uncle, for a while after my mom had died when I was little, so always felt close to this part of my family.

My sister is really struggling dealing with the situation with Timmy. She had lost her 6 yo grandson in November, when he drowned. That's only been 7 months ago, and now she is dealing with a new kind of grief on top of it. The doctors have told Leslie that if Timmy were their son, they would let him go, because he won't come back from this. When my sister had called, she made sure I had a chance to talk with Timmy (my Timmony Cricket), tell him I love him, and say good bye. She is ready to let him go, but his father isn't able to. His father was the one that was with their grandson when he drowned, so he has blamed himself, and I think if he agrees to turn off all life support, he'll blame himself for this too. So their goal right now is to get Timmy to a health condition in which he can be moved to a long term care facility for a couple of months, to give him every opportunity to regain some function, but that if he doesn't regain any functioning, they'll decide at that time what further steps to take or not take.

I've been waiting, ever since June 26th, for my sister to call me and tell me that Timmy has died, waiting to make that drive to Missouri for a funeral that I hope never has to come. It's been a rough time for my sister especially, and I'm being supportive for her, being here for her, listening when she needs to talk, and praying for a miracle, but have been grieving as well.

Add work to this and increased job responsibilities and stress on top of that ... I'll get through it. I always do. But right now is rough.
So sorry to hear all of this Benni. Big virtual hugs from the other side of the world. Please take care of yourself as well as those around you. 💜
 
You must be emotionally exhausted. Hoping brighter days come your way soon. I'm sorry for your nephew. Your sister. Your brother-in-law. You. And, all who were close to this young man. And for your cousin. And your sister's grandson. Too many loved ones lost in quick succession. I hope Timmy finds peace, however that may be.
 
You must be emotionally exhausted. Hoping brighter days come your way soon. I'm sorry for your nephew. Your sister. Your brother-in-law. You. And, all who were close to this young man. And for your cousin. And your sister's grandson. Too many loved ones lost in quick succession. I hope Timmy finds peace, however that may be.

It's been emotionally draining, for sure. Thank you for the well wishes. I'm most worried about sister right now. She was really close to her grandson and has not gotten over that loss, and now Timmy on top of that. She has 3 boys, with Timmy being the middle son, and she said that he was the one she could always talk to, the one who would listen. So she's lost that supportive son. The other two boys are always too busy and not patient enough to listen. But she's a strong woman, much stronger than I would be in her situation. And thank you for peaceful wishes for Timmy. He is a good kid, was always a good kid.
 
Thank you, maple. Virtual hugs are DEFINITELY welcomed!
Love You Hug GIF by Hallmark Gold Crown
 
Oh Benni, I really wish I knew what to say, other than I send you and your loved ones all the love in the world. It is not fair to have to put up with so much pain. Really, all my love.
 
Oh Benni, I really wish I knew what to say, other than I send you and your loved ones all the love in the world. It is not fair to have to put up with so much pain. Really, all my love.
Thank you Silver. That means a lot, believe me.
 
Update on Timmy: Leslie said they had taken him off the vent and have moved him to a step down unit from the ICU. She said she has read him a lot of the messages and prayers people have been sending her and that he had tears in his eyes. She also said that she was "arm wrestling" with him, and he pulled his arm back. I said, "Wait a minute, you mean Timmy is responding now???" She said she thinks he is, even if the doctors and nurses aren't acknowledging it and are still saying there is no brain activity. I don't know what any of it means, if maybe those were involuntary responses (which he still has) or if he is actually responding on some kind of level at various times and the doctors just aren't picking up on it ... I want to hope that maybe he is responding on some level, but I'm scared that it is just involuntary responses (which he still has). My sister is holding on tight with both hands thinking this means Timmy is fighting to come back, which worries me more because if it is involuntary responses it's going to hurt all that much more.
 
Oh boy. Didn't know any of this, not on facebook. Your sister and the whole family are really going through it this year. So devastating and heartbreaking. How can anyone cope with that? Sending love and strength to everyone.

Being taken off the vent means something. At least they don't have to make that call. I think everything you said above regarding responses could be true. I don't think you can recover if there is no brain activity from what little I've read. If he does make it to a long term facility, I hope it's a good one that will keep evaluating him properly. It could take a few months for them to be able to say goodbye if there's no improvement.
 
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When it rains... it pours. My oldest son, Josh (and my ex-sister-in-law and her granddaughter), have just informed me that his grandma died today. Mom was an awesome lady, if a little, what I've always called eccentric, her son (my 1st ex-husband, been married / divorced twice, no more for me) called her kooky. I adored her, but hadn't had any contact with her in a few years because she was diagnosed with Alzheimer's and her cognition had declined fairly rapidly. Please keep Josh, his aunt Karen, and great niece (I don't call her ex, she's way too sweet) in your prayers. And I'll even throw in my ex-husband for some prayers too. He wasn't the best person but he did gift me with my son, his sister, and her family (who I adore them all).
 
Oh boy. Didn't know any of this, not on facebook. Your sister and the whole family are really going through it this year. So devastating and heartbreaking. How can anyone cope with that? Sending love and strength to everyone.

Being taken off the vent means something. At least they don't have to make that call. I think everything you said above regarding responses could be true. I don't think you can recover if there is no brain activity from what little I've read. If he does make it to a long term facility, I hope it's a good one that will keep evaluating him properly. It could take a few months for them to be able to say goodbye if there's no improvement.

Thank you, poppy. Leslie is going to call me later this evening she said, to give me an update. I'm really worried that she is going to read more into his movements than what I think is there, but I'm not there to see him so ... I guess I'm trying to stay realistic but I really hope for a better outcome.

Leslie was ready, for awhile, to stop all life support, but her ex husband wasn't. He was with Ryan when Ryan drowned and blamed himself for losing his grip on him. I really think that's why they didn't make the decision earlier and decided to try to get him to a long term care facility when he was stable enough. We'll see what she says tonight when she calls.

I hope and pray it's good news. I'm emotionally drained right now. My son's grandma (father's side) died today and I was on the phone with him for hours a couple of nights ago, while he was grieving because they knew it wouldn't be long. And then Leslie and my aunt and ... It's been a long few weeks.
 
When it rains... it pours. My oldest son, Josh (and my ex-sister-in-law and her granddaughter), have just informed me that his grandma died today. Mom was an awesome lady, if a little, what I've always called eccentric, her son (my 1st ex-husband, been married / divorced twice, no more for me) called her kooky. I adored her, but hadn't had any contact with her in a few years because she was diagnosed with Alzheimer's and her cognition had declined fairly rapidly. Please keep Josh, his aunt Karen, and great niece (I don't call her ex, she's way too sweet) in your prayers. And I'll even throw in my ex-husband for some prayers too. He wasn't the best person but he did gift me with my son, his sister, and her family (who I adore them all).
So sorry Benni to you and your son, and family.
I think you've all had about enough.
Hugs.
 
Thank you everyone for the support.


Leslie said Timmy seemed to be doing better, the other day, but today they are talking about putting him back in ICU and sedating him. He's been neural storming all day. For those that don't know, with severe brain damage, the body has no way to regulate itself, so blood pressure gets elevated, temperature increases, heart rate goes up. It's extremely difficult on his system. Leslie said that if they aren't able to get the neural storming under control, she's going to talk with his dad about putting a DNR in place. She said he can't keep going through this and it's too hard on the family members that are able to visit to watch and go through this.
 
Benni, tell them to play music around him to see if that helps regulate the storming. My heart tells me that it's got to be the solution.
 
Thank you everyone for the support.


Leslie said Timmy seemed to be doing better, the other day, but today they are talking about putting him back in ICU and sedating him. He's been neural storming all day. For those that don't know, with severe brain damage, the body has no way to regulate itself, so blood pressure gets elevated, temperature increases, heart rate goes up. It's extremely difficult on his system. Leslie said that if they aren't able to get the neural storming under control, she's going to talk with his dad about putting a DNR in place. She said he can't keep going through this and it's too hard on the family members that are able to visit to watch and go through this.
damn
 

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